You will be part of something special. This is
our first year event. Our goal in the next few years
is to have runs across the nation in cities where other families with a child with this syndrome live.
We currently have 500 people throughout the world with the same diagnosis as Sammy. (and it is very underdiagnosed) We want a family to connect with a special place in their community that shares the goal of promoting awareness of children with disabilities.